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Remmy’s Story

Remmy is our first born and he was diagnosed with a liver disease called Biliary Atresia when he was two months old. The day of his confirmed diagnosis, the Gastroenterologist said we had one day to go home and pack because Remmy needed a temporary surgery called Kasai that would save his life for a little while as we would have to wait for a liver transplant. At this point we didn’t have a chance to process anything. We just rushed home and packed because his surgery had to be done in Salt Lake City, Utah and we had to be there the following day to start the process and meet his doctors.

We had absolutely nowhere to stay that night because we didn’t know anyone in Salt Lake and our son wasn’t going to be admitted into the hospital until the next day. That’s when his social worker talked to us about the Ronald McDonald House. We’ve seen the signs before but never really knew what the charity was. The first night we stayed at the House it was a complete blur. I remember having a nice warm bed to sleep in, a shower and a bag filled with necessities.

The next morning came and our son went into surgery. It was the longest 5 hours of our lives. Thankfully, everything went great and he was admitted into one of the rooms. Once we were settled into the hospital room, we realized that we had nowhere to shower, brush our teeth or even get a little rest. We had absolutely no money to spend every day on food in the cafeteria. So on top of us being worried about our son and how slow his recovery was we were also worried about how we were going to live during the next month.

Thankfully, Remmy’s Social Worker showed us the family rooms at the hospital. I can’t begin to describe the sense of relief you feel knowing that you don’t have to worry about showers, laundry, food, or somewhere to sleep.  It’s not home but it’s darn close to it when you’re in this situation, and you’re thankful for it.

It’s been almost 4 years now and we’ve been to the Ronald McDonald House more times than we can count. It REALLY IS our Home away from Home. Our son Remmy always says “Can we go to the Ronal Donal House?” That’s how he pronounces it.

We had the privilege of staying at the Ronald McDonald House from November 2017 to January 2018 when our son finally received his liver transplant.

I can go on and on about this absolutely beautiful charity. We just want people to understand that this place is a place that gives you a chance to stop and breathe and take a second for your child. While everything else in life is chaos and you feel like you’re suffocating with so many questions that sometimes can’t be answered, the House and Family Room gives you that moment to pause before you reach your limit of putting a strong face for your child. We don’t know where we would be without the Ronald McDonald House and I’m glad we don’t have to know. You are a blessing to our family and to so many others. Thank you so much from the bottom of our hearts! We love you Ronald McDonald House Charities!!! You are our family!

The Martinez Family

 

 

 

 

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